Catalyst Childcare is very interested in working with children who have Cockayne's Syndrome, and in increasing awareness of this rare genetic condition so that more children may be diagnosed sooner. Children who are diagnosed sooner are able to receive various forms of therapies sooner, which extends the child's lifespan.
For one type of Cockayne's Syndrome, a child's expected lifespan is only 7-1/2 years. That is the type of Cockayne's Syndrome that Catalyst Childcare is most interested in.
Also, Catalyst Childcare supports the use of alternative therapies, in addition to the traditional medical ones, and Catalyst Childcare encourages all families who have a child with Cockayne's Syndrome to have their child's genetic information included in a Cockayne Syndrome database, for research purposes.
For further information on Cockayne's Syndrome, please visit the Wikipedia article on it, at http://en.wikipedia.org/wiki/Cockayne_syndrome, and the Share & Care Cockayne Syndrome Network website at http://www.facebook.com/pages/Share-Care-Cockayne-Syndrome-Network/43331749281
For one type of Cockayne's Syndrome, a child's expected lifespan is only 7-1/2 years. That is the type of Cockayne's Syndrome that Catalyst Childcare is most interested in.
Also, Catalyst Childcare supports the use of alternative therapies, in addition to the traditional medical ones, and Catalyst Childcare encourages all families who have a child with Cockayne's Syndrome to have their child's genetic information included in a Cockayne Syndrome database, for research purposes.
For further information on Cockayne's Syndrome, please visit the Wikipedia article on it, at http://en.wikipedia.org/wiki/Cockayne_syndrome, and the Share & Care Cockayne Syndrome Network website at http://www.facebook.com/pages/Share-Care-Cockayne-Syndrome-Network/43331749281
Share & Care is having their 14th annual conference this August - registration is open now - and it's local, at least to Catalyst's home office. It will be from Thurs., Aug. 1, 2013, through Sun., Aug. 4, 2013, in Alexandria, VA.